The American Migraine Foundation (AMF) is a non-profit organization dedicated to the advancement of research and awareness surrounding migraine. The AMF launched the American Registry for Migraine Research (ARMR), which is a database (or registry) containing information about patients diagnosed with migraine and other types of headaches. ARMR is a valuable tool to advance research by helping physicians and researchers understand the causes, characteristics, costs and treatment of migraine and other types of headaches. ARMR data are expected to lead to improved treatments of migraine and other headaches.
As part of ARMR, a wide range of data is collected about headache patients, including:
- Information about age, gender, employment, education and other demographic information
- Symptoms, headache type and headache characteristics
- Impact of headache on your quality of life and functioning
- Severity and frequency of attacks
- Personal medical history, family medical history, and other medical information
- Blood samples from each patient, which are stored in a biorepository at the Mayo Clinic Biobank. These samples may be used for future studies, like investigating the genetic and other factors that may be associated with migraine and other headache types and markers that predict an individual’s response to a specific treatment.
We at the AMF believe that establishing ARMR – a large, long-term, accessible registry of patients with headache – will help researchers better understand the causes and effects of migraine and other types of headaches. We want to help physicians and researchers move closer to finding safer, more effective treatments for all headache patients. We will facilitate studies and collaboration among headache care providers and research institutions and help bring together global experts to achieve this goal. ARMR is a valuable tool that these experts can use to advance towards a cure and improve patient’s lives.
At the AMF, we believe that no one should suffer from the pain and burden of migraine and other disabling headache disorders. Through ARMR, we hope to advance headache research by pooling patient data from thousands of ARMR participants. It is our vision that the data from the registry may lead to the development of better treatments, improved understanding of the impact of migraine and better understanding of the causes.
Links to additional information from the American Migraine Foundation website. Clicking these links will open pages outside the ARMR website.